If You Link It They Will Come, If They Like It They Will Stay: The Utah Population Database as a Model for Creating a Confidential Linked Population Health Research Registry
Introduction There is increasing demand for so-called big data for a range of uses.One of the challenges is the method by which these data are obtained, the identiers used for record linking, how they are linked, and the secure manner by which researchers may use these data ethically.Objectives and Approach The Utah Population Database (UPDB) has a